At a glance

WP3 aims to understand the current landscape of information and infrastructure to support cancer patients, survivors, their families and caregivers and analyse maturity levels in implementing countries presented on a spectrum of maturity dimensions.

WP3 is led by HRI and contributed to by DKFZ, AIT, GOEG, IACS, HUPON, DoHIE, LSMU, LSDA, LIH, INC, CRIHM, OUS, INOMED, OIL, CPAS, MESC, BIH/CHA, UKHD, BSC, ITTM, ELIXIR.

The task

WP3 aims to support piloting/roll-out member states with a step-wise, result-oriented roadmap to implement patient information portal, EHDS compliance by design. The development of implementation strategy is in high alignment with the development of National Cancer Data Nodes (the CANDLE project).

Our work starts from identifying key determinants in assessing the maturation levels of a member states to implement patient information portal. This will be followed by a series of interviews with field experts, EHDS-related projects, national stakeholders, and decision-makers to identify key challenges, national priorities and practical solutions, which serves as the foundation to develop national implementation roadmaps.

Given the foreseen diversities in maturation across member states, WP3 has a clear focus on knowledge transferability from more advanced countries to the least to speed up and scale up the implementation process.